We have spent the past couple of weeks fine tuning our Mission and beginning the formation of our leadership team.  The completed Mission can be found HERE.  

Oh, and we tweaked the logo once more -- adding "Cure Intracranial Hypertension" to it makes our ultimate goal clearer, don't you think?

From all of our discussions about this foundation, Kathi and I have come to the conclusion that we are, first and foremost, a Patient Advocacy Group (thank you, Global Genes Project for introducing us to this term!) and this informs our every move.  The most important thing we can do is speak up for IH patients, giving them a voice -- and a face.  That is why raising awareness of IH is our first goal.  We know from our own experience that people tend to care more about causes that are personal -- where the public can get to know the people they are supporting -- and we (Kathi and I personally) love to learn more about the individuals affected by these diseases so that we can keep them close in our hearts.  So we have a tab here called, Meet Our IH Families.  We will ask members of the IH community to introduce themselves or their IH children so that our supporters will have a chance to meet (if even just in an article) these beautiful people who suffer so greatly from such a debilitating disease.

~ Pia