We are excitedly preparing for the Global Genes RARE Patient Advocacy Summit and Tribute to Champions of Hope Gala! Our friend, Monica, of TG Bears (she makes our Kathi Bear) is embroidering our foundation logo onto some polo shirts for us to wear to the summit. Can't wait to see what they look like! We went shopping this afternoon and found a beautiful blue gown for Kathi to wear, too. Now we just have to find one for me (that will be the hard part, I think!).
Kathi Bear is preparing to go to the summit with us, too, so she will get to meet her sister bear! Kendall, one of the Admins of our Facebook page, also has a Kathi Bear. We're going to do a little photo shoot there with the girls and their bears.
In addition to dresses and bears, we're busy putting together awareness materials to share with all the other rare advocates who will be attending this event weekend. So much to do, so much awareness to be raised! We're grateful to the Global Genes Project team for this wonderful opportunity to share and to learn. Watch for pics and stories after the event!
~ Pia
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